{"id":1182,"date":"2026-07-03T12:00:00","date_gmt":"2026-07-03T03:00:00","guid":{"rendered":"https:\/\/m.kawasaki-m.ac.jp\/mgm-lyso\/?p=1182"},"modified":"2026-09-26T13:17:36","modified_gmt":"2026-09-26T04:17:36","slug":"%e6%8e%b2%e8%bc%89%e6%83%85%e5%a0%b1%ef%bc%88%e8%ab%96%e6%96%87%ef%bc%89-8","status":"publish","type":"post","link":"https:\/\/m.kawasaki-m.ac.jp\/mgm-lyso\/?p=1182","title":{"rendered":"\u63b2\u8f09\u60c5\u5831\uff08\u8ad6\u6587\uff09"},"content":{"rendered":"\n

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Patient-driven surveys of mucopolysaccharidoses revealed patient-reported outcomes in the Japan MPS patient and family group.<\/strong>
Shibuya T, Akiyama T, Fujiyama T, Otomo T.
Orphanet J Rare Dis.<\/em><\/strong> 2026 Jul 3. doi: 10.1186\/s13023-026-04479-z. Online ahead of print.
PMID: 42400019
https:\/\/link.springer.com\/article\/10.1186\/s13023-026-04479-z<\/span><\/mark><\/a>



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